Welp, another one for my reading list.Set in North London, Intrusion begins with the story of Hope, a mother who has become a pariah because she won't take "the fix," a pill that repairs known defects in a gestating fetus's genome. Hope has a "natural" toddler and is pregnant with her second, and England is in the midst of a transition from the fix being optional to being mandatory for anyone who doesn't have a "faith-based" objection. Hope's objection isn't based on religion, and she refuses to profess a belief she doesn't have, and so the net of social services and laws begins to close around her.
I find this debate interesting, mostly because I don't see much choice in such things becoming possible and available in the future. The big questions are going to be about whether government decides to forbid or mandate anything along these lines.
Take a simple case. Someone is having a child through IVF. They have basic screening to test for genetic defects that would make the embryo not viable at all. As part of that screening other genetic information is available.
My question at this stage is does the government try to dictate how that information is used? If we have information about (non lethal) genetic disorders available, do we force the doctors to ignore it? To hide that information from the parents? Do we somehow force all viable embryos to be randomised before implantation? Do we hand all the information to the parents and let them choose?
What procedures do we put in place to stop doctors abusing such information, effectively making the choice for parents (or the choice we deny parents if you lean that way)?
How about for the sex of the child? Other genetic factors that become testable for in the future?
How about for parents who already have multiple children with a strongly heritable genetic disorder? How about when a certain disorder can't be directly tested for, but can have the risk controlled by selecting for other options, such as sex (think Downs, where the risk in males is far higher than for females)?
But then things get even harder when you realise that IVF is expensive, so if we 'allowed' (or rather, didn't forbid; limited forms of this are around today without needing any real permission) these things it would mostly be the well off/rich who benefit from them. I don't think we need to worry about a race of genetically engineered Übermensch anytime soon, but it's still extremely distasteful to me on a number of levels. But then, is making such treatments available through government funded medical care a good idea?
This area makes everyone (me included) very uncomfortable, but that just means there isn't enough solid discussion. Everyone sees eugenics as that thing that the Nazis did and inherent evil, but some level of eugenic selection is available right now
[Click here to choose the sex of your child today!] so I don't think we can really avoid this much longer.